tag:blogger.com,1999:blog-7931583758905269229.post6919405810600736936..comments2023-08-16T14:27:52.558+01:00Comments on Meg Says: Five Lessons I've Learnt About ME/CFSMeg Sayshttp://www.blogger.com/profile/05020262044885103695noreply@blogger.comBlogger39125tag:blogger.com,1999:blog-7931583758905269229.post-30641314412091844602015-02-16T15:30:08.525+00:002015-02-16T15:30:08.525+00:00Hi Meg! After reading your blog I am impressed how...Hi Meg! After reading your blog I am impressed how positive you try to keep yourself through the daily struggle with ME. I was 14 years old when I started with the illness after contracting Glandular Fever. Unfortunately for me I am almost 38 and still suffer from the debilitating condition. Every day is an up hill battle, not only due to my health but trying to raise two daughters he best way I can. I hope one day they will find a cure or even effective treatment' but until then I am thankful to be alive!,Catherinenoreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-14903063100938025342014-08-01T12:30:07.406+01:002014-08-01T12:30:07.406+01:00Glad it brought some sunshine through the rain, Ch...Glad it brought some sunshine through the rain, Christine :) xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-92011716874803066922014-08-01T07:44:06.615+01:002014-08-01T07:44:06.615+01:00What a wonderful & positive post, just the one...What a wonderful & positive post, just the one I needed on a rainy day. merci beaucoup!<br /><br />Christine<br />www.cfsfrei.blogspot.ch<br />Christinehttps://www.blogger.com/profile/11717729394935943665noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-33733249168477143892014-07-31T16:57:05.248+01:002014-07-31T16:57:05.248+01:00Thanks so much, Lennae :) I find you very inspirin...Thanks so much, Lennae :) I find you very inspiring, also - was reading your post the other day about how exercise has helped you and I loved it. I agree, your body responds well to positivity. Not saying that it can magically cure you, but it can only help your overall wellbeing, right? :) xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-44050770880518301882014-07-31T12:36:42.081+01:002014-07-31T12:36:42.081+01:00I love this post! It's so positive and inspiri...I love this post! It's so positive and inspiring! Life with ME/CFS is so hard and it can be extremely hard to keep positive and see a ME/CFS free future. Keeping positive is the best way to be, its good for you health! :) <br /><br />Lennae xxx<br />www.lennae87.wordpress.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-1851141371328817142014-07-30T23:00:18.602+01:002014-07-30T23:00:18.602+01:00Thank you! I've tried most of those but I'...Thank you! I've tried most of those but I'll try the ones I've haven't :) Meg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-19837472638324491362014-07-30T20:42:15.961+01:002014-07-30T20:42:15.961+01:00One thing ME taught me was not to rely on doctors....One thing ME taught me was not to rely on doctors. I don't know what you've tried to help but I've recovered a lot with probiotics, vitamin d and N-acteyl-cysteine and a gluten free diet. Found out about the methylation protocol on phoenix rising and an adapted version suits me. Hope you find something that increases the size of the spoon.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-60079666960106409142014-07-30T17:16:09.982+01:002014-07-30T17:16:09.982+01:00Thank you so much, it means a lot :) xThank you so much, it means a lot :) xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-7760618507137332382014-07-30T17:15:52.079+01:002014-07-30T17:15:52.079+01:00Thanks so much! It makes me so sad to hear of your...Thanks so much! It makes me so sad to hear of your story and how much you have lost, but so proud that you have the attitude that you do - it takes a very special person to be able to smile in the face of such adversity and loss. Thank YOU for inspiring me - what you've said about realising what's important really strikes a chord with me. What matters in life is so much clearer now that I've lost so many things and I have a much better sense of gratitude now. Sending lots of love your way, thanks again for your comment and lovely words! xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-67777172446230953222014-07-30T17:13:16.547+01:002014-07-30T17:13:16.547+01:00Thank you, Kaz :) wow, fifteen years and still smi...Thank you, Kaz :) wow, fifteen years and still smiling - I should be taking pointers from you! Great to hear that you have such an optimistic outlook, I always think 'what's the alternative?' To be miserable, down in the dumps, depressed and feeling like my life was worth nothing because I have this illness? No, thank you! It's very hard to live with but I'd much rather live it being happy with what I do have :) xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-29397622331458442732014-07-30T17:11:36.947+01:002014-07-30T17:11:36.947+01:00Thank you Mimmi, that's so kind of you to say!...Thank you Mimmi, that's so kind of you to say! I really appreciate you taking the time to leave such a lovely comment :) it makes my day to read things like this as it means awareness is spreading in the non-ME sufferer community (if that makes sense!) xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-87028220470011851752014-07-30T17:10:43.372+01:002014-07-30T17:10:43.372+01:00Thank you :) xThank you :) xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-89188526396853104652014-07-30T16:40:55.681+01:002014-07-30T16:40:55.681+01:00Wonderful post Meg! Very inspiring and beautifully...Wonderful post Meg! Very inspiring and beautifully written!ME CFS Self-help Guruhttps://www.blogger.com/profile/16389404574775132959noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-56095078306519457662014-07-30T03:06:14.594+01:002014-07-30T03:06:14.594+01:00Fantastic blog Meg!! I totally get where you'r...Fantastic blog Meg!! I totally get where you're coming from! I have had ME for 2yrs now and have gone from working full time as a registered nurse, owning my own home and going on yearly holidays to exciting places to being on the sickness benefit, living with my mum and basically having a very small and limited life! But I try everyday to see the good and be grateful for what I have, like a wonderful kind supportive family and wonderful friends! I have re-prioritized my life and now realise what was important to me prior to getting ME isn't really what life is about! So thank you for inspiring me :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-69532629572632043522014-07-29T18:56:32.653+01:002014-07-29T18:56:32.653+01:00What a brilliant post - I have the exact outlook a...What a brilliant post - I have the exact outlook as you, but I couldn't have written it so well. I'm 15 years in, but still smiling. I hope you get there before too long xKazhttps://www.blogger.com/profile/11598616693951524288noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-9674395516091842332014-07-29T18:52:51.949+01:002014-07-29T18:52:51.949+01:00What a lovely post! I can't imagine what it...What a lovely post! I can't imagine what it's like living with M.E, only that it must be really difficult, and I find your attitude really admirable and inspiring. Thank you for sharing :)<br /><br />xx Mimmi, <a href="http://mutedmornings.blogspot.se" rel="nofollow">Muted Mornings</a>Mimmihttps://www.blogger.com/profile/00455048606236616360noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-35581203521918292902014-07-29T18:33:38.843+01:002014-07-29T18:33:38.843+01:00Lovely post <3Lovely post <3lovelyliller.comhttp://lovelyliller.comnoreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-58749970147437413002014-07-29T13:35:21.034+01:002014-07-29T13:35:21.034+01:00Hi, Jules :) thanks so much! Oh that's brillia...Hi, Jules :) thanks so much! Oh that's brilliant, I recently made a YouTube video (search 'Flink Life' and it's called 'Let's Talk About M.E') - we didn't think any other sufferers did it! I'll be sure to check out your channel, can't wait to get another positivity boost from a fellow sufferer. I absolutely agree! If I can't have control over my body and what it's doing then I'm sure as heck going to have control over my mind, emotions and how I react to a bad situation. Hope you have a good week! xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-48848950785657804202014-07-29T13:28:30.234+01:002014-07-29T13:28:30.234+01:00Hey Meg!
Great post and great blog. Just finished ...Hey Meg!<br />Great post and great blog. Just finished doing a Youtube about the same stuff. The Surviving ME/CFS Show - Episode 3 .. Keep up the positivity matey. We can't control much about our illness, but we can choose to have a BRILLIANT attitude. Jules.<br /><br />http://survivingcfs.blogspot.com.au/Juleshttps://www.blogger.com/profile/03290123297124831122noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-24052699053879108502014-07-29T12:58:52.924+01:002014-07-29T12:58:52.924+01:00Thanks, Helen :) xThanks, Helen :) xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-72970994582708923502014-07-29T12:58:43.187+01:002014-07-29T12:58:43.187+01:00You're so welcome, Holly! The way I see it it&...You're so welcome, Holly! The way I see it it's kind of like the 80/20 diet where you can indulge 20% of the time if you eat clean 80% of the time - we're allowed to have those moments of sadness as we're only human, but with this illness it can be so easy to slip into a negative frame of mind and it's really important to deal with your emotions and learn how to cope. What's the alternative? I've found blogging so therapeutic also, it has really helped me and I'm so happy that it has helped you too :) I've got a job through blogging, it's amazing isn't it?! Working from home will be so ideal for us. Good luck! I am too - it's lovely to meet such great people. Lots of love! xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-21000451988173380992014-07-29T09:17:37.210+01:002014-07-29T09:17:37.210+01:00Brilliant and true. Brilliant and true. Anonymoushttps://www.blogger.com/profile/04372454283886227825noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-23137920698085961652014-07-29T09:00:24.985+01:002014-07-29T09:00:24.985+01:00Thanks for sharing Meg.
It took me a long time to ...Thanks for sharing Meg.<br />It took me a long time to get to this point as well for me it's been five years and I went through the stages of worthlessness and self pitty but I had to come to that point where I had to say enough is enough life is better than this and I deserve to be happy.<br />It has only been since the end of February that I have picked up my life and started to do great things with my time. <br />I found the blogging world and I have just found a possible business opportunity that I will be able to do at home and in my own time at my own speed.<br />It took me ages to be able to deal with the pain and how to be able to live life and actually be able to leave the house happily.<br />I love that I have found you Meg! <br />Thank you for sharing your story.<br />xo Holly xo <br /><br /><a href="http://hollydolly88.blogspot.com.au" rel="nofollow"> HollyDolly. </a>Holly Valehttps://www.blogger.com/profile/05387409895528935904noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-351970889252385612014-07-29T04:29:36.671+01:002014-07-29T04:29:36.671+01:00Thank you Anna, that's so sweet of you to say!...Thank you Anna, that's so sweet of you to say! I hope so :) aww, thank you - I'll definitely take a look, you're a gem xMeg Sayshttps://www.blogger.com/profile/05020262044885103695noreply@blogger.comtag:blogger.com,1999:blog-7931583758905269229.post-56337856314110657142014-07-29T02:32:45.518+01:002014-07-29T02:32:45.518+01:00It is so inspiring that you took something so awfu...It is so inspiring that you took something so awful and made it into something beautiful. I don't know what you are going through, but I know your positive attitude will help those who are in the same situation. <br />I nominated you for the Liebster blog award! Check it out <a href="http://missannarebecka.blogspot.com/2014/07/liebster-award.html" rel="nofollow">Here</a> If you'd like. <br />xo <br /><a href="http://missannarebecka.blogspot.com/" rel="nofollow">MissAnnaRebecka</a><br /> Anonymoushttps://www.blogger.com/profile/09535956335975684787noreply@blogger.com